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BioMed Research International - Volume 2015 2015, Article ID 342420, 6 pages -

Research ArticleDepartment of Obstetrics and Gynecology, Peking Union Medical College Hospital, Chinese Academy of Medical Sciences, Peking Union Medical College, No. 1 Shuaifuyuan, Wangfujing Street, Dongcheng District, Beijing 100730, China

Received 28 August 2014; Revised 9 October 2014; Accepted 28 October 2014

Academic Editor: Hao Deng

Copyright © 2015 Chunqing Wang and Qinjie Tian. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.


Objective. In the process of care for disorders of sex development DSD, clinical decisions should focus on the long-term quality of life QOL. We sought to investigate the QOL of patients with DSD in China. Design. Case-control study was carried out. Patients. 90 patients of DSD participated in the study. Finally, 87 patients were analyzed including Turner’s syndrome 23, Noonan syndrome 2, androgen insensitivity syndrome 22, testicular regression syndrome 2, congenital adrenal hyperplasia 16, and pure gonadal dysgenesis 22. Measurements. The WHOQOL-BREF questionnaire was chosen for the present investigation. Four domain scores were analyzed independently including physical, psychological, and social relationship and environmental domains. Results. The average age of the DSD group is 22.34 ± 4.97 years, and only 13.79% patients ever had sexual life. The scores of psychological and environmental domains were lower than that of the physical and social relationship domains, but the difference was not significant . Compared with the Chinese urban population, the QOL scores of DSD patients in China were not significantly lower. Conclusions. With proper treatment, including the follow-up and psychological support, the QOL of DSD patients cannot be significantly reduced. For DSD patients, more attention should be paid to the potential psychological and sexual problems.

Autor: Chunqing Wang and Qinjie Tian



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