The Danish National Lymphoma Registry: Coverage and Data QualityReportar como inadecuado




The Danish National Lymphoma Registry: Coverage and Data Quality - Descarga este documento en PDF. Documentación en PDF para descargar gratis. Disponible también para leer online.

Background

The Danish National Lymphoma Register LYFO prospectively includes information on all lymphoma patients newly diagnosed at hematology departments in Denmark. The validity of the clinical information in the LYFO has never been systematically assessed.

Aim

To test the coverage and data quality of the LYFO.

Methods

The coverage was tested by merging data of the LYFO with the Danish Cancer Register and the Danish National Patient Register, respectively. The validity of the LYFO was assessed by crosschecking with information from medical records in subgroups of patients. A random sample of 3% N = 364 was made from all patients in the LYFO. In addition, four subtypes of lymphomas were validated: CNS lymphomas, diffuse large B-cell lymphomas, peripheral T-cell lymphomas, and Hodgkin lymphomas. A total of 1,706 patients from the period 2000–2012 were included. The positive predictive values PPVs and completeness of selected variables were calculated for each subgroup and for the entire cohort of patients.

Results

The comparison of data from the LYFO with the Danish Cancer Register and the Danish National Patient Register revealed a high coverage. In addition, the data quality was good with high PPVs 87% to 100%, and high completeness 92% to 100%.

Conclusion

The LYFO is a unique, nationwide clinical database characterized by high validity, good coverage and prospective data entry. It represents a valuable resource for future lymphoma research.



Autor: Bente Arboe , Tarec Christoffer El-Galaly, Michael Roost Clausen, Peter Svenssen Munksgaard, Danny Stoltenberg, Mette Kathrine Ny

Fuente: http://plos.srce.hr/



DESCARGAR PDF




Documentos relacionados