When people live with multiple chronic diseases: lessons from the use of a social media to promote global collaborative effortsReportar como inadecuado

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While public health and modern medicine contributed to a dramatic increase in life expectancy in the 20th century, the downside of this success has been an epidemic of chronic, incurable diseases, which now account for more than 80% of deaths worldwide. This epidemic has created yet another new phenomenon: a growing number of people are living with multiple chronic diseases at the same time, having to cope with them within out-dated, disconnected and unprepared healthcare delivery systems that continue to focus on acute care of curable diseases, or on single conditions that affect individual organs or systems. On June 1, 2010, as part of Spain’s Presidency of the European Union, the Andalusian government launched the first cocreated, interactive, living and global book on the main challenges faced by people who live with multiple chronic diseases. The book, which received input from every inhabited continent, was co-created with support from free social resources available through the Global Observatory of Innovative Practices for Complex Chronic Diseases known in Spanish as OPIMEC and available at www.opimec.org. The book, and the live content available at OPIMEC, summarizes the best available knowledge on this important and seriously neglected area, and proposes innovative strategies to fill the gap between what is known and what should be done to meet the needs and expectations of a growing number of vulnerable people in every society in the world. It also lists key questions that remain unanswered, and that could be tackled by teams of individuals supported by the platform. The knowledge created by this global community is available to anyone with access to the Internet, free of charge, in English and Spanish, and will continue to evolve through the Observatory, where anyone interested in multiple chronic diseases and Internet access could make contributions at any time, from anywhere.


Chronic disease; polypathology; social media; collaboration; web 2.0; Internet; Web; disease management

Cite this paper

Autor: Alejandro Alex R. Jadad, Andres Cabrera, Renee Lyons, Francisco Martos, Richard Smith

Fuente: http://www.scirp.org/


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