Vol 21: Launching PCORnet, a national patient-centered clinical research network.Reportar como inadecuado



 Vol 21: Launching PCORnet, a national patient-centered clinical research network.


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This article is from Journal of the American Medical Informatics Association : JAMIA, volume 21.AbstractThe Patient-Centered Outcomes Research Institute PCORI has launched PCORnet, a major initiative to support an effective, sustainable national research infrastructure that will advance the use of electronic health data in comparative effectiveness research CER and other types of research. In December 2013, PCORIs board of governors funded 11 clinical data research networks CDRNs and 18 patient-powered research networks PPRNs for a period of 18 months. CDRNs are based on the electronic health records and other electronic sources of very large populations receiving healthcare within integrated or networked delivery systems. PPRNs are built primarily by communities of motivated patients, forming partnerships with researchers. These patients intend to participate in clinical research, by generating questions, sharing data, volunteering for interventional trials, and interpreting and disseminating results. Rapidly building a new national resource to facilitate a large-scale, patient-centered CER is associated with a number of technical, regulatory, and organizational challenges, which are described here.



Autor: Fleurence, Rachael L; Curtis, Lesley H; Califf, Robert M; Platt, Richard; Selby, Joe V; Brown, Jeffrey S

Fuente: https://archive.org/







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