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Health and Quality of Life Outcomes

, 6:37

First Online: 28 May 2008Received: 27 June 2007Accepted: 28 May 2008

Abstract

BackgroundBeing able to do things other kids do is the desire of school-age children and adolescents with asthma. In a phenomenology study, adolescents identified participation in life activities as the outcome variable and primary motivator for behavioral changes in coming to accept asthma as a chronic condition. In preparation for testing an acceptance model for older school-age children and early adolescents diagnosed with asthma, the Participation in Life Activities Scale was developed. The purposes of this paper are to describe development, and report on face and content validity of the scale designed to measure one aspect of quality of life defined as level of unrestricted involvement in chosen pursuits.

MethodsItems generated for the instrument evolved from statements and themes extracted from qualitative interviews. Face and content validity were evaluated by eight lay reviewers and 10 expert reviewers. Rate of accurate completion was computed using a convenience, cross-section sample consisting of 313 children and adolescents with asthma, ages 9–15 years, drawn from three studies. Preliminary cross-group comparisons of scores were assessed using t-tests and analysis of variance.

ResultsFace and content validity were determined to be highly acceptable and relevant, respectively. Completion rate across all three studies was 97%. Although cross-group comparisons revealed no significant differences in overall participation scores based on age, race or residence groupings p > .05, significant difference were indicated between males and females p = .02, as well as the highest and lowest socioeconomic groups p = .002.

ConclusionAssessing content validity was the first step in evaluating properties of this newly developed instrument. Once face and content validity were established, psychometric evaluation related to internal consistency reliability and construct validity using factor analysis procedures was begun. Results will be reported elsewhere.

List of abbreviationsPLAParticipation in Life Activities Scale

LAQLife Activities Questionnaire for Childhood Asthma

PAQLQPediatric Asthma Quality of Life Questionnaire

ICCInterclass Correlation

PedsQL™Pediatric Quality of Life Inventory™ Generic Core Scales and Asthma Module

AAQOLAdolescent Asthma Quality of Life Questionnaire

HIPAAHealth Insurance Portability and Accountability Act

SEISNam-Powers Socioeconomic Index Scores

Electronic supplementary materialThe online version of this article doi:10.1186-1477-7525-6-37 contains supplementary material, which is available to authorized users.

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Autor: Eileen K Kintner

Fuente: https://link.springer.com/



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