Youth report of healthcare transition counseling and autonomy support from their rheumatologistReport as inadecuate

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Pediatric Rheumatology

, 10:36

First Online: 14 November 2012Received: 09 August 2012Accepted: 10 November 2012


BackgroundTo increase understanding of the healthcare transition HCT process for young people living with Juvenile Idopathic Arthritis JIA by examining: 1 the extent to which youth report discussing HCT topics with their rheumatologist and 2 the association between youth perceptions of autonomy support from their rheumatologist and HCT discussions.

MethodsData are from an online survey of youth in the United States with rheumatologic conditions n= 134. HCT discussion was measured by 4 questions from the National Survey of Children with Special Health Care Needs. Youth perception of autonomy support was measured using a validated 6-item scale.

ResultsOne third of the youth 33.7% reported talking to their rheumatologist about transferring to adult medicine. Less than half 40.8% of respondents talked with their rheumatologist about adult healthcare needs, and less than a quarter 22.0% discussed acquiring health insurance as an adult. Nearly two-thirds of respondents 62.7% reported that their rheumatologist usually-always encourages self-care responsibility. Multivariate analyses revealed significant associations between rheumatologist support for youth autonomy and HCT counseling.

ConclusionThe low frequency of HCT counseling reported indicates a continuing need to increase awareness among rheumatologist in the USA. The strong associations between rheumatologist’s support for youth autonomy and HCT counseling suggest that developmentally -in-tune- providers may deliver the best guidance about transition planning for youth living with arthritis.

KeywordsHealthcare transition Autonomy support Adolescent health Young adult Arthritis Counseling Chronic condition  Download fulltext PDF

Author: Courtney Kellerman Wells - Barbara J McMorris - Keith J Horvath - Ann W Garwick - Peter B Scal


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