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Journal of Aging ResearchVolume 2014 2014, Article ID 486521, 9 pages

Research Article

Disability Services, Queensland Department of Communities, Child Safety and Disability Services, Brisbane, QLD 4001, Australia

University of New England, Armidale, NSW, Australia

School of Rural Medicine, University of New England, Armidale, NSW 2351, Australia

Aged Care Standards and Accreditation Agency Ltd., Sydney, NSW 2124, Australia

Received 27 October 2013; Accepted 6 January 2014; Published 20 February 2014

Academic Editor: Astrid E. Fletcher

Copyright © 2014 Prabhjot Singh et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.


Dementia is one of the major causes of disability and dependence amongst older people and previous research has highlighted how the well-being of people with dementia is inherently connected to the quality of their relationships with their informal carers. In turn, these carers can experience significant levels of emotional stress and physical burden from the demands of caring for a family member with dementia, yet their uptake of formal services tends to be lower than in other conditions related to ageing. This paper is based on a qualitative study undertaken in the Australian state of Queensland and explores issues of access to and use of formal services in dementia care from the perspective of the informal family carers. It identifies three critical points at which changes in policy and practice in the formal care system could improve the capability of informal carers to continue to care for their family member with dementia: when symptoms first become apparent and a diagnosis is sought; when the condition of the person with dementia changes resulting in a change to their support needs; and when the burden of informal care being experienced by the carer is so great that some form of transition appears to be immanent in the care arrangement.

Autor: Prabhjot Singh, Rafat Hussain, Adeel Khan, Lyn Irwin, and Roslyn Foskey



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