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International Journal for Equity in Health

, 13:124

Health, equity and the post-2015 agenda: raising the voices of marginalized communities


The purpose of this bibliography is to present studies from peer-reviewed and grey literature that used consultations and other participatory strategies to capture a community’s perspective of their health priorities, and of techniques used to elevate participation from the implementation phase to a more upstream phase of prioritization, policymaking and agenda setting. The focus here is of those studies that worked with marginalized populations or sub-populations. This bibliography contains four areas of research. It begins by first offering some philosophical and conceptual frameworks that link participatory interventions with inclusive policy making or agenda setting, and a rationale for prioritizing marginalized populations in such an undertaking. After situating ourselves in this manner, the second section looks at various participatory instruments for participatory consultations, for reaching out to marginalized populations, and for communicating the results to policymakers. Two sets of distinctions are made here: one between external non-invitation and internal stifling of opinions exclusion, and between mere participation and from active inclusion within consultations and within the policies. In the third section, examples of consultations that created or changed policy in various jurisdictions are shared, followed by a final section on a reflective and evaluative look at the recruitment, instruments and examples. An earlier iteration of this bibliography was created to assist a multi-country research project by the author to inform the UN Post-2015 development framework of the views of several diverse and highly marginalized populations around the world on their health-related priorities.

KeywordsParticipation Consultations Inclusion Marginalization Post-2015 MDGs Priorities Frameworks Methods AbbreviationsUNUnited Nations

NGONon-governmental Organizations

PRAParticipatory rural appraisal

SESSocioeconomic status

CVDCardiovascular disease

NYUHHCNew York University Health and Hospitals Corporation

HIVHuman Immunodeficiency virus

ACTAreas Coordinating Teams

CIOMSCouncil for International Organizations of Medical Sciences

WHOWorld Health Organization

UNESCOUnited Nations Organization for Education, Science and Culture

NHANational Health Assembly

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Author: Faraz Rahim Siddiqui


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