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Reference: Ngwenya, N, Kenten, C, Jones, L et al., (2017). Experiences and Preferences for End-of-Life Care for Young Adults with Cancer and Their Informal Carers: A Narrative Synthesis. Journal of Adolescent and Young Adult Oncology.Citable link to this page:

 

Experiences and Preferences for End-of-Life Care for Young Adults with Cancer and Their Informal Carers: A Narrative Synthesis

Abstract: To review the qualitative literature on experiences of and preferences for end-of-life care of people with cancer aged 16-40 years (young adults) and their informal carers. A systematic review using narrative synthesis of qualitative studies using the 2006 UK Economic and Social Research Council research methods program guidance. Seven electronic bibliographic databases, two clinical trials databases, and three relevant theses databases were searched from January 2004 to October 2015. Eighteen articles were included from twelve countries. The selected studies included at least 5% of their patient sample within the age range 16-40 years. The studies were heterogeneous in their aims, focus, and sample, but described different aspects of end-of-life care for people with cancer. Positive experiences included facilitating adaptive coping and receiving palliative home care, while negative experiences were loss of self and nonfacilitative services and environment. Preferences included a family-centered approach to care, honest conversations about end of life, and facilitating normality. There is little evidence focused on the end-of-life needs of young adults. Analysis of reports including some young adults does not explore experience or preferences by age; therefore, it is difficult to identify age-specific issues clearly. From this review, we suggest that supportive interventions and education are needed to facilitate open and honest communication at an appropriate level with young people. Future research should focus on age-specific evidence about the end-of-life experiences and preferences for young adults with cancer and their informal carers.

Publication status:PublishedPeer Review status:Peer reviewedVersion:Publisher's versionDate of acceptance:2016-12-02 Funder: Marie Curie Research Grants Scheme   Funder: National Institute for Health Research   Notes:© Nothando Ngwenya et al., 2017; Published by Mary Ann Liebert, Inc. This Open Access article is distributed under the terms of the Creative Commons License.

Bibliographic Details

Publisher: Mary Ann Liebert

Publisher Website: http://www.liebertpub.com/

Journal: Journal of Adolescent and Young Adult Oncologysee more from them

Publication Website: http://www.liebertpub.com/overview/journal-of-adolescent-and-young-adult-oncology/387/

Issue Date: 2017-01-11Identifiers

Doi: https://doi.org/10.1089/jayao.2016.0055

Issn: 2156-5333

Eissn: 2156-535X

Uuid: uuid:3417fda6-39bf-4f4d-a857-213fe420ad88

Urn: uri:3417fda6-39bf-4f4d-a857-213fe420ad88

Pubs-id: pubs:671552 Item Description

Type: journal-article;

Language: eng

Version: Publisher's versionKeywords: end-of-life care narrative synthesis palliative care qualitative systematic review

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Autor: Ngwenya, N - - - Kenten, C - - - Jones, L - - - Gibson, F - - - Pearce, S - - - Flatley, M - - - Hough, R - - - Stirling, LC - -

Fuente: https://ora.ox.ac.uk/objects/uuid:3417fda6-39bf-4f4d-a857-213fe420ad88



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