The 2010 National Child Count of Children and Youth Who Are Deaf-BlindReport as inadecuate

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The National Child Count of Children and Youth who are Deaf-Blind is the first and longest running registry and knowledge base of children who are deaf-blind in the world. It represents a 25-plus year collaborative effort between the National Consortium on Deaf-Blindness (NCDB), its predecessors and each state deaf-blind project throughout the country, as well as those projects funded in the Pacific Trust territories--the Virgin Islands and Puerto Rico. It has been collaboratively designed and implemented as the common vehicle to meet federal grant requirements for both the state/multi-state and national technical assistance projects and serves as a common data collection and reporting mechanism for use across the country. Consistent with the priorities under which NCDB, its predecessors, and the state/multi-state projects are funded, this national child count is used to identify national and state technical assistance needs for children and youth who are deaf-blind, their families, and the service providers and systems which serve them (Killoran, 2007). The child count is conducted each year to supplement the Office of Special Education Programs' (OSEP's) Federal Part C and Part B Child Counts (Special Education Child Count), which include children as deaf-blind only when deaf-blindness is their single disability. Some of the emerging trends identified in the 2010 Deaf-Blind Child Count include: (1) The overall numbers of children identified as deaf-blind has decreased over the past several years as projects continue to "clean" their databases. This trend is consistent with the time period of 1996-1998 when similar efforts were undertaken; (2) The prevalence of CHARGE Syndrome has increased significantly over the past five years. The prevalence of Usher Syndrome reached a peak in 2007 and has decreased over the past three years; (3) The percentage of children/youth identified as needing further vision testing has decreased from 15.6% to 7.3%.; and (4) The percentage of children/youth identified as needing further hearing testing has decreased from 20.4% to 8.9%. [For the 2009 Deaf-Blind Child Count, see ED545210.]

Descriptors: Deaf Blind, Children, Databases, Agency Cooperation, Data Collection, Technical Assistance, Needs Assessment, Family Needs, Early Intervention, Young Children, Access to Education, Student Needs, Federal Legislation, Educational Legislation, Age Differences, Geographic Location, Racial Differences, Ethnicity, Gender Differences, Visual Impairments, Classification, Hearing Impairments, Neurological Impairments, Etiology, Comorbidity, Disabilities, Educational Environment, Educational Methods, Standardized Tests, State Standards, Student Evaluation, Eligibility, Special Education, Inclusion, Place of Residence, Assistive Technology

National Consortium on Deaf-Blindness. Teaching Research Institute Western Oregon University 345 North Monmouth Avenue, Monmouth, OR 97361. Tel: 800-438-9376; Fax: 503-838-8150; e-mail: info[at]; Web site:

Author: National Consortium on Deaf-Blindness


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