Care staff and family member perspectives on quality of life in people with very severe dementia in long-term care: a cross-sectional studyReportar como inadecuado




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Health and Quality of Life Outcomes

, 12:175

First Online: 09 December 2014Received: 03 April 2014Accepted: 19 November 2014

Abstract

BackgroundLittle is known about the quality of life of people with very severe dementia in long-term care settings, and more information is needed about the properties of quality of life measures aimed at this group. In this study we explored the profiles of quality of life generated through proxy ratings by care staff and family members using the Quality of Life in Late-stage Dementia QUALID scale, examined factors associated with these ratings, and further investigated the psychometric properties of the QUALID.

MethodsProxy ratings of quality of life using the QUALID were obtained for 105 residents with very severe dementia, categorised as meeting criteria for Functional Assessment Staging FAST stages 6 or 7, from members of care staff n = 105 and family members n = 73. A range of resident and staff factors were also assessed.

ResultsCare staff and family member ratings were similar but were associated with different factors. Care staff ratings were significantly predicted by resident mood and awareness-responsiveness. Family member ratings were significantly predicted by use of antipsychotic medication. Factor analysis of QUALID scores suggested a two-factor solution for both care staff ratings and family member ratings.

ConclusionsThe findings offer novel evidence about predictors of care staff proxy ratings of quality of life and demonstrate that commonly-assessed resident variables explain little of the variability in family members’ proxy ratings. The findings provide further information about the psychometric properties of the QUALID, and support the applicability of the QUALID as a means of examining quality of life in very severe dementia.

KeywordsQUALID Family caregivers Staff attitudes Well-being AbbreviationsADQApproaches to Dementia Questionnaire

AwareCare RIAwareCare Responsiveness Index

BASOLLBehavioural Assessment Scale of Later Life

FASTFunctional Assessment Staging

GADSGuy’s Advanced Dementia Schedule

GHQGeneral Health Questionnaire

MBIMaslach Burnout Inventory

PCAPrincipal components analysis

PRSPositive Response Scale

RCTRandomised Controlled Trial

QUALIDQuality of Life in Late-stage Dementia Scale

Electronic supplementary materialThe online version of this article doi:10.1186-s12955-014-0175-3 contains supplementary material, which is available to authorized users.

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Autor: Linda Clare - Catherine Quinn - Zoe Hoare - Rhiannon Whitaker - Robert T Woods

Fuente: https://link.springer.com/



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