Paediatric palliative care: development and pilot study of a ‘Directory’ of life-limiting conditionsReportar como inadecuado




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BMC Palliative Care

, 12:43

Palliative care in other conditions conditions

Abstract

BackgroundChildren’s palliative care services are developing. Rational service development requires sound epidemiological data that are difficult to obtain owing to ambiguity in the definitions both of the population who needs palliative care and of palliative care itself. Existing definitions are of trajectory archetypes. The aim of this study was to develop and pilot a directory of the commonest specific diagnoses that map on to those archetypes.

MethodsThe diagnoses of patients under the care of five children hospices and a tertiary specialist palliative medicine service in the UK were recorded. Duplicates and diagnoses that were not life-limiting conditions according to the ACT-RCPCH criteria or were not primary were removed. The resulting Directory of life-limiting conditions was piloted by analysing Death Certificate data of children in Wales between 2002 and 2007.

Results1590 diagnoses from children’s hospices and 105 from specialist palliative medicine were combined. After removals there were 376 diagnostic label. All ICD10 chapter headings were represented by at least one condition. The pilot study showed that 569 54% deaths in Wales were caused by LLC. Only four LLC resulted in ten or more deaths. Among deaths from LLC, the ten commonest diagnoses accounted for 32%, while the 136 diagnoses that caused one or two deaths accounted for 25%. The majority occurred from a small number of life-limiting conditions.

ConclusionThe Directory is a practical tool for identifying most life-limiting conditions using ICD10 codes that facilitates extraction and analysis of data from existing sources in respect of life-limiting conditions in children such as death certificate data, offering the potential for rapid and precise studies in paediatric palliative care.

KeywordsPalliative care Symptom control Epidemiology Trajectory Public health Electronic supplementary materialThe online version of this article doi:10.1186-1472-684X-12-43 contains supplementary material, which is available to authorized users.

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Autor: Richard Hain - Mary Devins - Richard Hastings - Jayne Noyes

Fuente: https://link.springer.com/







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